Books |
Title |
Author(s) |
Contact info/website |
Brief description |
Yes, You Can! |
Margaret C. Hammond, M.D., Robert Umlauf,
Ph.D., Brenda Matteson, Sonya Perduta-Fujiniti MSN (EDs) |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370
(718) 803-3782
http://www.unitedspinal.org/ |
This easy-to-read guide on self care
for persons with SCI covers psychological,
social, medical, and vocational issues. For patients, families,
and professionals/students who are new to the management
of SCI. Available in English or Spanish. (120 pages) |
Accessible Building Design |
United Spinal Association |
|
Architectural information for
accessible housing; sample house plans showing exterior
and interior views; answers to FAQs to barrier-free
designs; links to other resources such as building
codes and regulations, financial aid, and universal designs. |
Job Search Handbook
for People with Disabilities |
Daniel J. Ryan Ph.D |
|
Job seekers with disabilities
learn to best represent themselves and reassure potential
employees that they are capable workers. For people with
disabilities and carreer development professionals. |
Life On Wheels |
Gary Karp |
|
Deals with
almost all aspects of life for all wheelchair users:
rehabilitation, selecting a wheelchair, staying healthy,
traveling, adaptive technology, politics and legislation,
intimacy, sex and babies. |
Profiles-- AT in Real Life |
Missouri Assistive Technology |
|
Each story provides a snapshot
of how Missourians with disabilities use assistive technology
every day and how important it is to their health, well-being,
and independence. |
Nothing Is Impossible:
Reflections on a New Life |
Christopher Reeve |
|
Clearly of most obvious value to those
facing the challenges of physical paralysis, this book also
serves as an inspirational primer for otherwise able-bodied
individuals who may be thwarted by mental rather than physical
wounds. |
Still Me |
Christopher Reeve |
|
Christopher Reeve struggled for his life
after breaking his neck in a riding accident in 1995. After
that, he directed an Emmy Award-winning HBO movie. In this
book, Reeve recounts his trials and triumphs. Includes 32
pages of photos. |
The Spinal Cord Injury Handbook
|
Richard
C Senelick, Karla Dougherty |
|
This book tells about the various types
of spinal injuries and how each injury is different based
on where the injury is located and how it affects your body
and daily life skills. The book gives insight as to what
the family has to deal with as well as the patient.
|
Sexuality
After Spinal Cord Injury : Answers to Your Questions
(Paperback)
|
Stanley H. Ducharme, Ph.D.; Kathleen M.
Gill, Ph.D.
|
|
Anatomy, fertility, sexually transmitted
diseases, self-esteem, sexual satisfaction, and parenting
are among the many physical and emotional issues discussed
in this candid and compassionate guide.This handbook
relays practical information while acknowledging different
lifestyles, tastes, values, and orientations. |
|
Magazines |
Title |
Author(s) |
Contact info/website |
Brief description |
New Mobility Magazine |
New Mobility |
|
A monthly magazine focusing
on "Disability Lifestyle, Culture and Resources." |
Pushin' On |
UAB Rehab Institute |
|
Published twice a year, Pushin'
On disseminates information on living with SCI. |
Paraplegia News |
Paralyzed Veterans of America |
Paralyzed Veterans of America
PVA Distribution Center,
P.O. Box 753
Waldorf, MD 20604-0753
Toll-free: (888) 860-7244
Phone: (301) 932-7834
http://www.pva.org/
|
A monthly news / information
magazine for people with mobility impairments covering the
latest on SCI research, new products, legislation,
people with disabilities, accessible travel, computers, and
more. |
Sports 'n Spokes |
Paralyzed Veterans of America |
Paralyzed Veterans of America
PVA Distribution Center,
P.O. Box 753
Waldorf, MD 20604-0753
Toll Free: (888) 860-7244
Phone: (301) 932-7834
http://www.pva.org/
|
A monthly magazine
for wheelchair athletes and other people who use a wheelchair
who pursue an active lifestyle. Check out their annual survey
of lightweight wheelchairs in the Online Article Library! |
SCI Life |
National Spinal Cord Injury
Assoc. |
|
SCI Life is a quarterly magazine
filled with issue-driven articles, and news of interest to
the SCI community and the larger disability community. |
Abilities |
Canadian Abilities Foundation |
|
A life style magazine for
Canadians with disabilities, their families, friends and
professionals. |
Access-Able Travel
Magazine |
Access-Able Travel |
|
An accessible travel magazine
by travel writers who have disabilities. They bring you firsthand
experience with accessible destinations, attractions, active
and passive adventures, cruises, lodging, transportation
and products that aid in facilitating travel. |
Mainstream Magazine |
Mainstream |
|
Covers news, current affairs,
new products, technology, profiles of movers and shakers,
education, employment, sexuality, relationships, housing,
transportation, travel and recreation. Advocates for disability
rights. |
The Ragged Edge Magazine |
The Ragged Edge |
|
Successor to the Disability
Rag magazine. Civil Rights magazine which covers laws available
and laws being pursued for physically disabled individuals
and those interested in SCI civil rights. |
|
Booklets |
Title |
Author(s) |
Contact info/website |
Brief description |
| SCI PILOT |
SCI PILOT |
The Toronto Rehabilitation Institute
Toronto, Ontario M4g 3V9
(416) 597-3422
http://www.scipilot.com/
_g/home_g/index.shtml |
An informational resource about the process
of choosing, acquiring and using equipment after a spinal cord
injury. |
| Capitol Access Booklet |
Missouri Assistive Technology |
Missouri Assistive Technology
Independence, MO 65055-6975
(800) 647-8557; (816) 373-5193
http://www.at.mo.gov/publications/
publications.shtm |
This booklet is designed to provide information
about accessibility in the state capitol so that Missourians
with disabilities can fully participate in state government
activities. Direction is provided for requesting access accommodations,
such as interpreters or Braille material, for legislative activities,
functions in the governor's office, capitol tours and for rotunda
activities. Diagrams of the capitol are provided, indicating
the location of accessible parking, restrooms and elevators
to the House and Senate gallery areas. |
| Accessible Air Travel |
United Spinal Association |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370-
(718) 803-3782
http://www.unitedspinal.org/
pages.php?catid=7 |
A handy guide that explains the Air Carrier
Access Act and provides information about air travel for wheelchair
users. |
| Understanding The Fair Housing Amendments
Act |
United Spinal Association |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370-
(718) 803-3782
http://www.unitedspinal.org/
pages.php?catid=7 |
The FHAA prohibits discrimination on the basis
of disability in housing, sales, rentals, or financing. Learn
how to benefit from the law’s protection. |
| Understanding the ADA |
United Spinal Association |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370-
(718) 803-3782
http://www.unitedspinal.org/
pages.php?catid=7 |
Details the most important provisions of the
ADA as well as the available tax incentives for small businesses
that remove barriers for people with disabilities. |
| Appreciated Securities |
United Spinal Association |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370-
(718) 803-3782
http://www.unitedspinal.org/
pages.php?catid=7 |
Tax saving gifts |
| Access State & Local Government |
United Spinal Association |
United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, NY 11370-
(718) 803-3782
http://www.unitedspinal.org/
pages.php?catid=7 |
Summarizes the rights of people with disabilities
and the responsibilities of state and local governments under
the ADA (Title II). Includes a compliance checklist. |
| National Study of Women with Physical
Disabilities. Special Summary. |
CROWD |
Center for Research on Women with Disabilities
Houston, TX 77046-
1-800-442-7093; (713) 960-0505
http://www.bcm.tmc.edu/crowd/
educational_material/
educational_material.html |
|
| Community Resource Directory |
Missouri Model Spinal Cord Injury System staff |
Missouri Model Spinal Cord Injury System
Columbia, MO 65212
1-800-720-6286; (573) 882-6271
http://www.umshp.org/hp/resources/
sci/scimanuals.htm#crd |
The Resource Directory includes information
about agencies, services and resources for persons with SCI:
assistive technology, recreation, support
groups, consumer telephone hotlines, driving evaluation, transportation,
travel, home modifications, Internet SCI resources, SCI-related
magazines and newsletters, Missouri Centers for Independent
Living, Vocational Rehabilitation offices, and a glossary
of SCI-related terms. |
| Enrichments Catalog |
Sammons-Preston
|
Sammons-Preston
1-800-323-5547
http://www.sammonspreston.com |
Enrichments Catalog features products designed
to help individuals with special needs perform daily tasks
such as dressing, dining and bathing. |
| MaxiAids Catalog |
MaxiAids |
MaxiAids
1-800-522-6294
http://www.maxiaids.com/store/
default.asp |
MaxiAids is a provider of adaptive products,
products for independent living, and products designed simply
to enhance your lifestyle by making your life and daily tasks
easier. |
| Sears Home & Wellness |
Sears |
Sears
1-800-326-1750
http://searshealthandwellness.com/ |
The catalog consists of daily living products
for those with a disability. |
| Access to Recreation |
Access to Recreation |
Access to Recreation
1-800-634-4351
http://www.accesstr.com |
Disabled recreational equipment for a more active
life. Equipment for bowling, cycling, weightlifting, fishing
and hunting, and many more. |
| Smart Home |
Smart Home |
Smart Home
1-800-762-7846
http://www.smarthomeusa.com/ |
This home modification company makes homes more
convenient, safe, and fun. |
|
Newsletters |
Title |
Author(s) |
Contact info/website |
Brief description |
| The Spinal Cord Injury Newsletter |
Medical News Publishing |
P.O. Box 99702
San Diego, CA 92169-9702
http://www.cureparalysis.org/
chanaud/ |
Educational newsletter that describes and explains current
scientific information about SCI in terms which nonscientists
can understand. It reports on basic science, such
as experimental drug treatments, neural transplantation and
nerve regeneration. |
| Spinal Cord Injury Update |
University of Washington, Rehabilitation Medicine |
Box 356490
Seattle,WA 98195-6490
(206) 685-3999
http://depts.washington.edu/rehab/
sci/update.html |
Articles on various aspects of
SCI for both health care providers and consumers, as well as
summaries of current literature on SCI. |
| Wheelchair Access & News |
Wheelchair Access & News |
PO Box 12
Glenmoore, PA19343
(610) 942-3266 |
Lists available wheelchair accessible
homes for sale or rent. Also includes practical resources such
as used wheelchairs, vans, services, equipment, etc. All information
is also published in the agency’s web site. |
| WINGS |
California Pacific |
592 West Ammunition, Apt #1
Fallbrook, CA 92028-3102
http://www.cal-pac.org/disability/
wings.htm |
A publication for Methodists (and others) with disabilities. |
| Access For Disabled Americans Newsletter |
Access For Disabled Americans |
1475 No. Broadway #420
Walnut Creek, CA 94596
(925) 932-9001
http://maxpages.com/disabledaccess/
NEWSLETTER |
Quarterly print newsletter provides travel-related
information and descriptions of new products. A one-year subscription
is free with a donation to Access for Disabled Americans. |
| Breaking New Ground |
AgrAbility, Purdue University |
1146 ABE Building
West Lafayette, IN 47907-1146
800-825-4264; (795) 494-5088
http://abe.www.ecn.purdue.edu/ABE/
Extension/BNG/bnginfo.html#Services |
A twice-yearly newsletter with information and accounts adaptive
and assistive technology and techniques adopted for farmers
and other people with disabilities who live in rural areas. |
| A Guide to Wheelchair Sports and Recreation |
Paralyzed Veterans of America |
801 Eighteenth Street, NW
Washington DC 20006
(800) 424-8200
http://www.pva.org |
This guide is a general introduction to the
kinds of sports equipment and activities available nationally. |
| A Guide for the Wheelchair Traveler |
Access for Disabled Americans |
1475 No.Broadway #420
Walnut Creek, CA 94596
(925)-932-9001
http://maxpages.com/disabledaccess/
WHEELCHAIR_TRAVEL_GUIDE |
A travel guide and trip planner for the wheelchair traveler.
The guide is written to eliminate the stressful research of
locating accessible hotels and transportation, and provide
tips on air travel, ground transportation and cruises. |
| Able News |
Able Newspaper |
PO Box 395
Old Bethpage, NY 11804
(516) 939-2253
http://ablenews.com/ |
Able Newspaper is a monthly newspaper that is published
for, by and about the disabled, with the focus on the Able. |
| ATHENA |
CROWD |
Center for Research on Women with Disabilities
3440 Richmond
Avenue Suite B
Houston TX 77046
800-442-7093; (713) 960-0505
http://www.bcm.edu/crowd/
?PMID=1350
|
Newsletter focuses
on advancing the health and well-being of women with disabilities. |
| Bridging the Gap |
Christopher Reeve Paralysis Foundation |
500 Morris Avenue
Springfield, NJ 07081
1-800-225-0292
http://www.christopherreeve.org/team/
member.cfm |
This twice monthly electronic newsletter covers efforts to
find a cure for paralysis caused by SCI and
other central nervous system disorders. |
| Common Threads |
Montana University Affiliated Rural Institute on Disabilities |
52 Corbin Hall
The University of Montana
Missoula, MT 59812-70561
888-268-2743; (406) 243-5467
http://rtc.ruralinstitute.umt.edu/Trn/
RuTrnCT.htm |
Newsletter published twice a year by the RTC on Rural Rehabilitation
Services. |
| Connections |
Kessler Institute for Rehabilitation, Inc. |
1199 Pleasant Valley Way
West Orange, NJ 07052
1-800-643-0296; (201) 731-3600
http://www.kmrrec.org/nnjscis/
consumer.php?cnav=8 |
Newsletter shares information on the services available
at Kessler for the rehabilitation, treatment, and support of
those with SCI, as well as to highlight developments
in SCI research. |
| Palaestra |
Palaestra |
P.O. Box 508
Macomb, IL 61455
(309) 833-1902
http://www.palaestra.com/ |
Sports and recreation for the physically handicapped. |
| Resourceful Woman |
Rehabilitation Institute of Chicago |
345 East Superior Street
Chicago, IL 60611
http://www.ric.org/community/
womendc.php |
Newsletter for women with disabilities striving toward health
and self-determination. |
| The Rural Exchange |
Rural Institute on Disabilities |
52 Corbin Hall
The University of Montana
Missoula, MT 59812-7056
1-888-268-2743; (406) 243-5467
http://ruralinstitute.umt.edu/training/
publications.asp |
Newsletter published quarterly by the Montana University
Affiliated Rural Institute on Disabilities. |
| SCI Access |
Model SCI Care System |
300 North Ingalls
University of Michigan
Ann Arbor, MI 48109-0491
(734) 763-0971
http://www.med.umich.edu/pmr/
modelsci/access.htm |
Provides information about research
and other treatment updates as well as social options pertinent
to those with SCI. Most issues include a Resource
Corner, where noteworthy books, magazines, CDs, or web sites
are reviewed. Profiles or interviews of staff or former patients
are included in all issues. |
|
Multimedia |
Title |
Author(s) |
Contact info/website |
Brief description |
Accessible Doors and Entrances |
Center for Universal Design |
|
One in a video series on standards for
accessible design for architects, designers, planners, and
others responsible for physical and communications accessibility
in public accommodations and commercial, state and local
government facilities. Discusses doors, entrances, exits,
areas of rescue assistance. |
Consumer Direction in PAS: How
to Work Together |
Program Development Associates |
|
Self-paced training for personal assistants
focuses on consumer-directed services and supports independence
options mandated by U.S. Supreme Court’s Olmstead decision |
Life After SCI: Volume 2, Transferring & Adapting |
Altimate Medical, Inc. |
|
This video includes footage of transfers
into vans, pickups, tractors, pontoons, standing frames,
exercise machines, and more; Alan Tholkes shares his personal
transfer techniques for transferring in a variety of environments;
and interviews with men and women
with spinal cord injuries as they discuss rehabilitation,
family reaction, and adapting. |
Nothing is Impossible |
Christopher Reeve Paralysis Foundation |
|
"'Nothing is Impossible' is a reminder
that life is not to be taken for granted but to be lived
fully with zeal, curiosity, and gratitude. It is a powerful
message in itself, but it is the messenger who gives it full
resonance." |
A Message from Margaret Nosek,
Ph.D. |
Margaret Nosek, Ph.D |
|
To the International Leadership Forum for
Women with Disabilities. |
SCI Video Access lending program
of information videos |
Spinal Cord Injury Network International |
|
SCINI has over 200 videos on topics relating
to SCI, including accessibility, education/training,
employment, housing, sports, transportation/ travel, and
wheelchair use and repair. These videos are available for
loan by mail free of charge to spinal cord injured individuals
and their families. |
Tool Box |
Breaking New Ground |
Breaking New Ground
1146 ABE Building
West Lafayette, IN 47906
E-Mail: bng@ecn.purdue.edu
(765) 494-5088; (800) 825-4264
|
CD includes revised and updated fact sheets,
plus added features, such as video clips, hyperlinks to the
web sites and e-mail addresses of product suppliers, full-color
photographs, and more than 75 new products. |
Take Control |
Arkansas Spinal Cord Commision |
Arkansas Spinal Cord Commision
800-459-1517; (501) 296-1792
|
Presents a comprehensive curriculum in
SCI designed to help
people learn more about SCI and the skills it takes to keep
healthy. |
|
